Books/Opinions
Medical Genetics
Neil F. Sharpe (January 2019) Interview: "Genetic Testing Liability". FPN Advisen Ltd. This article went out to nearly 200,000 commercial insurers. For genetic testing results, physicians need to consider how the following could affect the patient's understanding and interpretation:
-the potential psychological impact of the language/numbers applied to discuss test results and/or risk information
-ensure effective communication that is practically understandable in the patient's first language and terminology especially with regard to risk information
-refer to a genetic counselor or other genetics specialist if unsure about explaining test results (e.g. a potentially harmful genetic variation -mutation- doesn't mean the patient always will fully develop the condition)
Neil F Sharpe (2016- July/August) Review/Opinion, Draft American Society Of Human Genetics Policy Statement on Human Germline Genome Editing.
Neil F. Sharpe , Ronald F. Carter (authors/editors) (2006) Genetic Testing: Care, Consent, and Liability. 594 pages. (Wiley-Liss- John Wiley & Sons). Hoboken, New Jersey.
"The Publisher wishes to report a significant error in Genetic Testing: Care, Consent, and Liability, edited by Neil F. Sharpe and Ronald F. Carter. On page 116, in the paragraph headed "Wrongful Abortion," the details of a legal case (Breyne v. Potter, 2002) involving the prenatal genetic testing for Down syndrome are incorrectly presented… Somehow, during the final stages of the production process at John Wiley & Sons, Inc., the reference to ' 47,XXX' was replaced with the phrases 'Trisomy 21 (Downs Syndrome).'
The Publisher regrets this error and wishes to take full responsibility for it, as it was clear that Sharpe and Carter had indeed approved the correct reference to 47,XXX".
Thomas H. Moore Senior Editor, Life and Medical Sciences John Wiley & Sons, Inc. Hoboken, New Jersey, USA
Neil F Sharpe & Ronald F Carter. Nature Genetics 38, 970 (2006)
Neil F. Sharpe (1997) In Control: Making The Most of the Genetic Test for Breast Cancer. 228 pages (Prentice Hall).
-An invaluable resource for patients, their families and the health care community- The Medical Post. By special arrangement with Prentice Hall, this book was prepared and distributed to geneticists, counselors, physicians and cancer clinics where it continues to serve as a reference text for patients and physicians.
Law Neil F. Sharpe (1983) Conveyancing Requisitions. 195 pages (Butterworths): This book remains Butterworths' best selling, first edition real estate text. An expanded, looseleaf, second edition was postponed due to the collapse of the real estate market in late 1980s. By the time the publisher was ready to proceed, I was full time in medical genetics.
Selected Associations
-National Protocol For Huntington's Disease
-Canadian Collaborative Group On Cancer Genetics
-Depressive And Manic-Depressive Association
-Member Emeritus American Society Of Human Genetics
-Association of Genetic Counsellors (Ontario)
Selected Papers/Presentations
Neil F. Sharpe (2010) Review of D. Koepsell, Who Owns You? The Corporate Gold Rush To Patent Your Genes. Amer. J. Med. Genet. 152 (1): 256-257. Neil F. Sharpe, R.F. Carter (2002) Human genetics: research on ethical, legal and social impact of genetic testing. A649. Encyclopaedia of the Human Genome. Nature Publishing Group Reference (London England). Neil Sharpe (2002) Revolutionary Biology: Review of D. P. Barash,The New Gene-Centered View Of Life. Quarterly Review of Biology. 77(3): 320-321. Hunter AG, Sharpe Neil, Mullen M, Meschino WS (2001) Ethical, legal, and practical concerns about recontacting patients to inform them of new information: the case in medical genetics. Amer. J Med Genet. 103(4):265-76. Neil Sharpe (2001) The Troubled Helix: Review of T. Marteau, M. Richards, Social and Psychological Implications Of The New Human Genetics. Quarterly Review of Biology. 76(1): 80. Neil Sharpe (2000) Faculty of Medicine, University of Toronto, Hospital of Sick Children, Program in Genetics: BRCA1/2 Testing: Commercial Testing and Clinical Care. Neil Sharpe (1999) Association of Genetic Colleagues of Ontario, Annual Conference: Predictive Genetic Testing: Care, Counselling and Liability. Neil Sharpe (1999) Faculty of Medicine, University of Toronto, Hospital of Sick Children, Program in Genetics: BRCA1/2 Testing: Ethical, Clinical and Legal Perspectives. Neil Sharpe (1999) The Duty to Recontact: Benefit and Harm. Amer. J. Hum. Genet. 65: 1201-1204.
https://www.cell.com/ajhg/fulltext/S0002-9297(07)62626-3
Neil Sharpe (1998) Society of Medical Technologists Annual Conference: Ethical, Clinical and Legal Perspectives of Genetic Testing. Neil Sharpe (1998) American Association of Clinical Chemists Annual Conference: Predictive Genetic Testing. Neil Sharpe (1997) Reinventing the Wheel? Informed Consent and Genetic Testing for Breast Cancer, Cystic Fibrosis, and Huntington Disease. Queen's Law J. 22:389-452. Neil Sharpe (1996) Genetic screening and testing: A model duty of care. Health Law J. 4:119-134. Neil Sharpe (1995) Genetics Program: Chedoke-McMaster Medical Centre: Genetic Testing: Care, Consent and Confidentiality. Neil Sharpe (1994) Royal Commission on Reproductive Technology; Brief: Presymptomatic Genetic Testing: Communication, Counselling and Informed Consent. Neil Sharpe (1994) Psychological Aspects of Genetic Counseling; A legal perspective. Amer. J. Med. Genet. 50:234-238. Neil F. Sharpe (1994) Informed Consent and Huntington Disease: A model for communication. Amer. J. Med. Genet. 50: 239-246. Neil Sharpe (1993) Presymptomatic Testing for Huntington Disease: Is There a Duty to Test Those Under the Age of Eighteen Years? Amer. J. Med. Genet. 46(2):250-3. Neil Sharpe (1993) Group Session and M.D. Program, McMaster University, Hamilton, Canada: Genetics and the Evolving Physician-Patient Relationship: Communication, Informed Consent and Confidentiality. Neil Sharpe (1993) Law Reform Commission; Brief: Genetic Testing, Medical Confidentiality, and the Duty to Warn Third Parties.
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